Stage IV EGFR Non-Small Cell Lung Cancer: Bill's Patient Story

Patient Info: Bill, Male | Stage IV

Biomarkers: EGFR exon 21 mutation

Metastatic Site: Spine; brain; hips/bone

Stage IV EGFR exon 21 lung cancer improved in brain and spine on osimertinib, but later lung-mass growth led to clinical-trial treatment; Bill remained active in advocacy and felt positive about progress.

Lung Cancer Research FoundationRead more →

EGFR Lung Cancer: Ivy's Patient Story

Patient Info: Ivy Elkins, Female

Biomarkers: EGFR-mutated

Ivy Elkins passed away and is remembered for her EGFR-mutated lung cancer advocacy, co-founding EGFR Resisters, patient representation, fundraising, and research-community bridge building.

Lung Cancer Research FoundationRead more →

Stage IV ALK Non-Small Cell Lung Cancer: Suzanne's Patient Story

Patient Info: Suzanne, Female | Stage IV

Biomarkers: ALK mutation identified on tissue biopsy; blood biomarker test was negative

Metastatic Site: Not specified

Stage IV ALK-positive lung cancer was stable for almost 4 years on alectinib before progression in mid-2023; Suzanne moved to brigatinib and radiation and was working toward stability again.

Lung Cancer Research FoundationRead more →

Stage IV EGFR Lung Cancer: Dann's Patient Story

Patient Info: Dann Wonser, Male, 40s | Stage IV

Biomarkers: EGFR mutation; T790M mutation

Metastatic Site: Not reported

Dann Wonser passed away on June 30, 2024, 18 years after being diagnosed at age 49 with Stage IV EGFR/T790M-mutated lung cancer.

Lung Cancer Research FoundationRead more →

Stage IV ALK Non-Small Cell Lung Cancer: Donna's Patient Story

Patient Info: Donna Preston, Female | Stage IV

Biomarkers: ALK mutation

Metastatic Site: Not specified

Living nearly 9 years after a January 2015 Stage IV ALK-positive lung cancer diagnosis, with ongoing targeted therapy and good functional status; exact drug name is not reported.

Lung Cancer Research FoundationRead more →

Stage IV EGFR Non-Small Cell Lung Cancer: Rhonda's Patient Story

Patient Info: Rhonda Martin, Female | Stage IV

Biomarkers: EGFR-positive mutation

Metastatic Site: Brain; spine; hip bone; lymph nodes; cerebrospinal…

Rhonda Martin passed away on January 9, 2023 from complications of Stage IV EGFR-positive lung cancer, nearly 5 years after diagnosis in March 2018.

Lung Cancer Research FoundationRead more →

EGFR Non-Small Cell Lung Cancer: Joanne's Patient Story

Patient Info: Joanne, Female, 60s

Biomarkers: EGFR exon deletion 19 mutation

Ongoing care after right upper-lobe resection, 4 rounds of chemotherapy, and daily Tagrisso for EGFR exon 19 deletion lung adenocarcinoma; formal stage is not stated in the story.

Lung Cancer Research FoundationRead more →

Anne Forth LaPorte: Stage IV Lung Cancer

Patient Info: Anne Forth LaPorte, Female | Stage IV

Metastatic Site: Not reported

Anne Forth LaPorte passed away on January 19, 2024, after being diagnosed with Stage IV lung cancer in 2020 during the COVID-19 pandemic.

Lung Cancer Research FoundationRead more →

EGFR Lung Cancer: Caroline's Patient Story

Patient Info: Caroline, Female

Biomarkers: Germline EGFR T790M mutation

Ongoing surveillance for germline EGFR T790M-associated lung nodules / lung cancer risk after October 2022 surgery and complications; the story does not support Stage IV disease for Caroline.

Lung Cancer Research FoundationRead more →

Stage IV ALK Lung Cancer: Elizabeth's Patient Story

Patient Info: Elizabeth Moir, Female, Under 40 | Stage IV

Biomarkers: ALK mutation / ALK-positive

Metastatic Site: Liver; bones

Elizabeth passed away on August 27, 2021 at age 32 from complications of Stage IV ALK-positive lung cancer, after earlier achieving a July 2019 scan with no evidence of disease on oral targeted therapy.

Lung Cancer Research FoundationRead more →

Stage IV Lung Cancer: Hakim's Patient Story

Patient Info: Hakim Rusli, Male | Stage IV

Metastatic Site: Brain

Stage IV lung cancer with brain metastasis became controlled after care at Modern Cancer Hospital Guangzhou; progression slowed and symptoms/supportive issues were managed, but no remission or NED status is reported.

Stage IV ALK Non-Small Cell Lung Cancer: Marley's Patient Story

Patient Info: Marley, Female | Stage IV

Biomarkers: ALK-positive

Metastatic Site: Chest lymph nodes; axillary lymph nodes; lymph nodes…

Living with Stage IV ALK-positive NSCLC involving lymph nodes and malignant pleural fluid, with scans every 3 months; specific treatment regimen is not reported.

Lung Cancer Research FoundationRead more →

Stage IV Lung Cancer: Mila's Patient Story

Patient Info: Mila Gardon, Female, 50s | Stage IV

Metastatic Site: Neck lymph nodes; skull; iliac bone

Stage IV lung cancer with spread to neck lymph nodes, skull, and iliac bone responded after cryotherapy and interventional therapy; lung tumors disappeared and tumor marker normalized, but the source does not state full remission or NED.

Stage IV Lung Cancer: Xavier's Patient Story

Patient Info: Xavier Sanders, Male | Stage IV

Metastatic Site: Liver; brain; lymph nodes

Living with Stage IV lung cancer involving lymph nodes, liver, and 20 to 30 brain tumors while advocating for service members and caregiver support; exact treatment regimen is not reported.

Lung Cancer Research FoundationRead more →

Stage IV ALK Non-Small Cell Lung Cancer: Linnea's Patient Story

Patient Info: Linnea Olson, Female, 40s | Stage IV

Biomarkers: ALK mutation / ALK-rearranged lung cancer

Metastatic Site: Lungs / intrapulmonary disease

Living long term with Stage IV ALK-positive NSCLC; ALK-targeted clinical trials controlled disease for years but were described as disease control rather than cure.

Massachusetts General HospitalRead more →

Stage I EGFR Lung Adenocarcinoma: Julie's Patient Story

Patient Info: Julie, Female, 40s | Stage I

Biomarkers: EGFR exon 19 deletion

Ongoing care after Stage IB EGFR exon 19 lung adenocarcinoma treated with lower left lobectomy and Tagrisso/osimertinib, with CT and MRI surveillance; no recurrence/NED statement is explicitly provided.

Lung Cancer Research FoundationRead more →

Stage IV ALK Lung Cancer: Jay's Survivor Story

Patient Info: Jay Petri, Male | Stage IV

Biomarkers: ALK mutation / ALK-rearranged lung cancer

Metastatic Site: Not reported

Stage IV ALK-positive lung cancer treated through clinical trials at Mass General; he reported being cancer-free for nearly 1.5 years after going through 3 trials.

Massachusetts General HospitalRead more →

Stage IV Lung Cancer: Tejal's Patient Story

Patient Info: Tejal, Female | Stage IV

Metastatic Site: Not specified

Living with Stage IV lung cancer and advocating against stigma while raising awareness and research funding; treatment, biomarkers, and disease-control status are not reported.

Lung Cancer Research FoundationRead more →

Stage IV ALK Non-Small Cell Lung Cancer: Duane's Patient Story

Patient Info: Duane Steiner, Male, 50s | Stage IV

Biomarkers: ALK-positive / ALK gene mutation identified by molecular or genomic testing

Living more than 6 years with incurable Stage IV ALK-positive lung cancer, supported by targeted therapy, clinical-trial participation, Hope Lodge access, and periodic monitoring.

Stage IV Non-Small Cell Lung Cancer: Amy's Patient Story

Patient Info: Amy, Female | Stage IV

Metastatic Site: Neck lymph node; bones — hips, femurs, foot; adrenal…

Living 5 years after Stage IV squamous NSCLC diagnosis, after Keytruda did not work and treatment included bone radiation, SBRT to the lung nodule, and adrenal cryoablation.

Lung Cancer Research FoundationRead more →

Stage III ALK Non-Small Cell Lung Cancer: Michelle's Patient Story

Patient Info: Michelle Bos-Lun, Female | Stage III

Biomarkers: ALK-positive

Stage IIIB ALK-positive lung cancer responding to Lorbrena/lorlatinib, with cough improvement within days and first scan showing nearly 50% tumor reduction.

GO2 FoundationRead more →

Stage III ROS1 Non-Small Cell Lung Cancer: Wendy's Survivor Story

Patient Info: Wendy, Female | Stage III

Biomarkers: ROS1-positive / ROS1-rearranged

Completed chemoradiation, surgery, and post-surgery radiation for Stage III ROS1-positive NSCLC by January 2017 and later shared a long-term survivor/advocacy story; no explicit NED statement is given.

Lung Cancer Research FoundationRead more →

Stage IV ALK Lung Cancer: Duncan's Patient Story

Patient Info: Duncan Edmonstone, Male, 50s | Stage IV

Biomarkers: ALK-positive / ALK+ mutation

Metastatic Site: Brain

Living 6 years after Stage IV ALK-positive lung cancer with brain metastasis, doing well on ongoing alectinib targeted therapy with minimal side effects.

The Christie NHSRead more →

Stage III Lung Adenocarcinoma: Becky's Survivor Story

Patient Info: Becky Manning, Female, 40s | Stage III

After surgery, chemotherapy and 8 months of nivolumab on a clinical trial, Becky was no longer on active treatment, had no evidence of disease, felt well, and returned to MSK every 6 months for follow-up.

Memorial Sloan KetteringRead more →