ALK Positive Lung Cancer: 48 Real Stories
48 stories match lung cancer and ALK positive. 44 of them mention targeted therapy.
Stage IV ALK Lung Cancer: Leslie’s Patient Story
Leslie was active and teaching fitness classes when a persistent cough and worsening shortness of breath began to interfere with daily life. After repeated visits and treatments that did not help, swollen lymph nodes and increasing breathing difficulty led…
Read this storyStage IV ALK Lung Cancer: Frank’s Survivor Story
Frank Sierawski was diagnosed with Stage IV lung cancer in his 30s, when his three children were six, four, and two. The diagnosis affected the entire family. His children were young enough to remember little of the treatment, while his wife Kathryn carried…
Read this storyStage IV ALK Lung Cancer: Michelle’s Patient Story
Michelle had been living with ALK-positive lung cancer since 2018 when she developed persistent headaches, vomiting, ear popping, and a whooshing sound in her head. Remembering another patient who had developed leptomeningeal disease, she pressed for an…
Read this storyStage IV ALK Non-Small Cell Lung Cancer Patient Story
In the winter of 2018, a 31-year-old woman developed a lingering cough shortly after celebrating her first wedding anniversary with her husband, Jack. She was healthy, active, and had no major risk factors, but testing led to a diagnosis of Stage IV…
Read this storyStage IV ALK Lung Cancer: Sharon’s Patient Story
Sharon Schneider was diagnosed with a rare ALK-positive lung cancer in April 2017. She had previously completed 7 half marathons along with several 15K and 5K races, but cancer treatment and blood clots in her brain forced her to stop running. Later that…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Laura’s Patient Story
Laura was 38 when a persistent cough, fatigue, congestion, and occasional coughing of blood led to imaging during a routine Veterans Administration visit in April 2023. A chest X-ray appeared to show a 6 mm nodule in her right lung, but a CT scan showed that…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Linnea’s Patient Story
Linnea Olson was 45 when she was first diagnosed with lung cancer. Her initial diagnosis was Stage I, and she had surgery that removed most of her left lung, followed by chemotherapy. The first scan after chemotherapy showed something back in her lungs…
Read this storyStage IV ALK Lung Cancer: Jay’s Survivor Story
Jay Petri was diagnosed in 2008 and received clearer answers in fall 2009, when a good biopsy showed lung cancer with an ALK mutation. He understood that Stage IV lung cancer was probably terminal, and the diagnosis was followed by major personal loss when he…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Duane’s Patient Story
Duane Steiner was 50 when 2 nighttime fainting spells led to an emergency-room visit and a Stage IV lung cancer diagnosis in 2019. He had never smoked, so lung cancer was not something he expected. Molecular and genomic testing on the tumor later showed…
Read this storyStage III ALK Non-Small Cell Lung Cancer: Michelle’s Patient Story
Michelle Bos-Lun, a Vermont state representative, was hospitalized after returning from Nepal with what turned out to be scrub typhus. During that workup, doctors ordered a chest X-ray and saw something they could not explain. About 3 weeks of additional…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Suzanne’s Patient Story
Suzanne was a regular runner who usually covered 5 to 7 miles a day, so feeling sluggish during a morning run in October 2019 seemed like bronchitis at first. She saw her doctor before an upcoming race, and a chest X-ray quickly led to more scans. Within…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Donna’s Patient Story
Donna Preston was diagnosed with Stage IV lung cancer in January 2015. Her only symptom had been a cough that would not go away. At diagnosis, her 5 children were between 9 and 18 years old, and she wanted to keep family life as normal as possible while still…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Marley’s Patient Story
Marley first explained away symptoms as ordinary life: being tired as a mom, recovering from illness, seasonal allergies, anxiety, acid reflux, or being out of shape. By spring, hills and stairs made her breathless, nausea affected her whole day, and she had…
Read this storyStage IV ALK Lung Cancer: Elizabeth’s Patient Story
Elizabeth Moir was 29 and in the third trimester of her second pregnancy when severe chest pain sent her to the emergency room. She was first told the spot on her lung was a calcified granuloma, a small noncancerous area of inflammation. Two months later…
Read this storyStage IV ALK Lung Cancer: Duncan’s Patient Story
Duncan Edmonstone was 55 when a seizure led to a sudden Stage IV lung cancer diagnosis. He had not had the symptoms people often associate with lung cancer, such as a persistent cough or chest pain. After scans and tests, doctors found advanced lung cancer…
Read this storyStage IV ALK Lung Cancer: Jeff’s Patient Story
Jeff Meckstroth had a cough that lingered for several months before scans and biopsies led to a stage 4 lung cancer diagnosis in 2015. He and his wife, Rhonda, were initially told that he might have only months to live. Extra tissue collected for biomarker…
Read this storyStage IV ALK Lung Cancer: Nancee’s Patient Story
Nancee Pronsati was an active runner when a persistent cough kept being treated as bronchitis with antibiotics or inhalers. She had believed lung cancer mostly affected smokers, so it was not on her radar. During a race in Nashville, she coughed for 13 miles…
Read this storyStage IV ALK Lung Cancer: Jake’s Patient Story
Jake was 15 when severe migraines began in late 2012. For about 25 days, he hid the pain, took large amounts of Advil, and kept playing sports until his mother pushed for an MRI. The scan showed a golf-ball-sized tumor in his cerebellum. After brain surgery…
Read this storyStage IV ALK Lung Cancer: Kartik’s Patient Story
Kartik was 28 and a third-year internal medicine resident when he was diagnosed with Stage IV lung cancer. Molecular testing identified an EML4/ALK mutation, and he entered a targeted clinical trial. That treatment allowed him to continue working in medicine…
Read this storyStage IV EGFR Lung Cancer: Kelsey’s Patient Story
Kelsey was 36, a mother of 4, and working as a SoulCycle manager when severe back pain began changing her life. At first, she blamed work, commuting, aging, or a pulled muscle. Then she collapsed while coaching baseball and later had to crawl to the bathroom…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Megan’s Survivor Story
Megan was 33, active, a never-smoker, and raising 2 young children when chest pain began. Urgent care and ER visits first led to explanations such as a pulled muscle or anxiety. Then she developed shortness of breath on walks, arm pain, and visible veins in…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Clara’s Patient Story
Clara was living with Stage IV lung cancer when a difficult stretch of treatment nearly made her stop. She had already completed 7 rounds of chemotherapy and 10 rounds of radiation. During the summer, she also received immunotherapy, and August scans brought…
Read this storyStage IV ALK Non-Small Cell Lung Cancer: Stephanie’s Patient Story
Stephanie was diagnosed with Stage IV non-small cell lung cancer in December 2024, shortly after turning 44. She had been healthy, working full time, raising 2 teenage daughters, and recovering from COVID when a hacking cough returned. She treated it like a…
Read this storyStage IV ALK Lung Cancer: Ruchira’s Survivor Story
Ruchira had little reason to suspect lung cancer. She was young, healthy, a nonsmoker, and her cough was mild and intermittent. Her father first noticed it, but she ignored it for nearly a year. After she tested positive for COVID, a chest X-ray led to a CT…
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