Ovarian Cancer: Dana's Patient Story

Patient Info: Dana Kivel, female

Dana was living with recurrent, metastatic granulosa cell ovarian cancer and taking an aromatase inhibitor for a current tumor.

Stage III Invasive Lobular Carcinoma: Angie's Patient Story

Patient Info: Angie, Female | Stage III

Angie completed 4 AC, 12 Taxol, and 30 rounds of radiation for Stage III grade 3 ILC, then continued Arimidex for a planned 10 years as of September 2021.

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Invasive Lobular Carcinoma: Maureen's Patient Story

Patient Info: Maureen, Female

Biomarkers: Breast Cancer Index test used to guide duration of anti-estrogen therapy

Maureen completed double mastectomy and 30 radiation treatments for pleomorphic ILC and planned 10 years of anti-estrogen therapy based on Breast Cancer Index testing.

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Stage IV Invasive Lobular Carcinoma: Carol's Survivor Story

Patient Info: Carol, Female, 60s | Stage IV

Metastatic Site: Bone

Carol had de novo Stage IV breast cancer with bone metastases, achieved complete remission after chemotherapy, stayed on daily Letrozole for 10 years, then returned to NED/no active disease after Kisqali and Faslodex for bone progression.

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MSI-High Malignant Struma Ovarii With Lung and Liver Metastases 17 Years Later

Patient Info: Anonymized, Female, 50s | Stage Metastatic/Advanced

Biomarkers: NRAS, and ATM mutations; Ki-67 approximately 15%–29%

Metastatic Site: lungs|liver

She remained asymptomatic and tolerated pembrolizumab without obvious adverse effects after 4 doses, with follow-up imaging planned for metastatic lung and liver disease.

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Invasive Lobular Carcinoma: Susie's's Patient Story

Patient Info: Susie's daughter, Female, 40s

As of May 2021, Susie’s daughter was living after treatment for an 8 cm invasive lobular carcinoma and dealing with side effects from different endocrine therapies, while Susie became active in ILC advocacy and research support.

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Male breast cancer discovered after years of stiff-person syndrome

Patient Info: Anonymized, Male, 50s

Biomarkers: ER-positive; PR-positive; HER2-negative; anti-amphiphysin antibody positive at 1:64; hereditary cancer panel negative for pathogenic germline variants.

He completed curative-intent breast cancer treatment and reported substantial improvement in upper-body stiffness, although lower-extremity stiffness, cramps, and unsteadiness persisted.

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Breast cancer returned in the stomach and peritoneum after three years in remission

Patient Info: Anonymized, Female, 60s | Stage Metastatic/Advanced

Biomarkers: Initial breast tumor: ER 95%, PR 5%, HER2-negative, Nottingham grade 2. Metastatic peritoneal tumor: ER 80%

Metastatic Site: stomach; peritoneum

After metastatic breast cancer was confirmed in the stomach and peritoneum, she chose palliative care and inpatient hospice and died a few weeks later.

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Breast cancer with sarcoidosis that mimicked metastatic disease

Patient Info: Anonymized, Female, 40s

Biomarkers: ER-positive; PR-positive; HER2-negative.

Her most recent mammogram showed no recurrent breast cancer while she continued letrozole, goserelin, and six-monthly follow-up.

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Adenoid cystic cancer of the left breast treated with bilateral mastectomy and tamoxifen

Patient Info: Anonymized, Female, 60s

Biomarkers: BRCA1/2 negative for known pathogenic variants.

The left adenoid cystic carcinoma had not recurred, although a biologically distinct second primary later developed in right axillary ectopic breast tissue.

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Breast cancer recurrence in the mandibular condyle causing jaw pain

Patient Info: Anonymized, Female, 50s | Stage IV

Biomarkers: ER-positive; PR-positive; HER2-negative.

Metastatic Site: right mandibular condyle with extension into the…

After anastrozole and 60 Gy of radiation, her jaw pain, mouth opening, and function improved, although some discomfort remained and palliative systemic treatment was continuing.

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Recovery from severe bowel and oesophageal complications after breast cancer chemotherapy

Patient Info: Anonymized, Female, 40s

Biomarkers: HER2-positive.

She regained independence after an 89-day hospital course, but breast surgery remained deferred three months after intensive-care discharge and tamoxifen was being used during recovery.

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Locally advanced male breast cancer associated with a pathogenic ATM variant

Patient Info: Anonymized, Male, 50s | Stage Metastatic/Advanced

Biomarkers: ER 100% positive; PR 100% positive; HER2-negative; Ki-67 30%; germline pathogenic ATM variant c.2921+1G>A.

Two years after diagnosis, he had an ECOG performance status of 0 and remained without signs of breast-cancer relapse or another primary cancer.

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A durable response to trastuzumab in heavily pretreated metastatic breast cancer

Patient Info: Anonymized, Female, 60s | Stage IV

Biomarkers: Initial tumor ER-positive and PR-positive. Metastatic liver biopsy ER-negative and PR-negative with HER2 IHC 1+ and nonamplified. Later biopsy ER and PR weakly positive at 5%–10%, HER2 IHC 1+ and nonamplified, and ERBB3 p. with evidence of HER2/HER3 pathway activation.

Metastatic Site: lungs; hilar and mediastinal lymph nodes; liver; bone

She had ongoing benefit for more than 10 months on trastuzumab and capecitabine, with improved symptoms, lower tumor markers, and a confirmed partial response.

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Cherie's Stage 2 Breast Cancer Story After a Second Opinion

Patient Info: Cherie, Female, 50s | Stage II

Cherie described herself as being in remission while continuing hormone therapy. She remained concerned about relapse and used travel and painting to manage anxiety.

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Breast Cancer: Olive's Survivor Story

Patient Info: Olive

Her breast cancer was in remission, although she remained on hormonal therapy and continued managing fatigue, weight changes, and recurrence anxiety.

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Breast Cancer: Vivienne's Survivor Story

Patient Info: Vivienne

Vivienne said she was in remission after completing most of her treatment and continued hormone therapy.

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Stage III Breast Cancer: Alexandra's Patient Story

Patient Info: Alexandra, Female, 40s | Stage III

As of 2021, Alexandra was living with Stage III breast cancer and continuing chemotherapy after treatment with docetaxel, carboplatin, antibody drug conjugates, and tamoxifen.

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Stage II Breast Cancer: Amanda's Patient Story

Patient Info: Amanda, Female, 40s | Stage II

As of 2021, Amanda was on hormone therapy for Stage II breast cancer, managing fatigue, nausea/vomiting, and peripheral neuropathy while working through financial and fertility-related concerns.

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Stage II Breast Cancer: Marisol's Survivor Story

Patient Info: Marisol | Stage II

Marisol said the breast cancer was in remission after completing most active treatment, and she continued hormone therapy.

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Stage II Breast Cancer: Hwee's Patient Story

Patient Info: Hwee Lin, Female, 60s | Stage II

Hwee Lin was receiving targeted therapy for Stage II breast cancer and described the treatment as effective while managing fatigue, hair loss, nausea, and vomiting with medication and improved nutrition.

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Breast Cancer: Luz's Survivor Story

Patient Info: Luz

Luz described her breast cancer as being in remission after mastectomy, lymph-node surgery, and chemotherapy, and she remained on hormone therapy.

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Breast Cancer: Martha's Survivor Story

Patient Info: Martha

Martha said the breast cancer was in remission while she continued Letrozol hormone therapy.

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Stage II Breast Cancer: Sheryl's Patient Story

Patient Info: Sheryl | Stage II

Sheryl is currently receiving long-term hormone therapy and remains focused on becoming cancer-free.

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