EGFR Mutation: 55 Real Stories
55 stories match EGFR mutation. 46 of them mention targeted therapy.
Stage IV EGFR Non-Small Cell Lung Cancer: Rachael’s Patient Story
Rachael Malmberg was an Olympic athlete, an active-duty service member, and otherwise healthy when she was diagnosed with lung cancer. Because she did not match the profile she expected, she began researching possible causes and learned about radon. Within 2…
Read this storyEGFR Non-Small Cell Lung Cancer Patient Story
In February 2021, an emergency evaluation for a possible abdominal problem unexpectedly found a mass in the upper lobe of the right lung. Further testing led to a diagnosis of non-small cell lung cancer adenocarcinoma. Tumor testing identified an EGFR exon 19…
Read this storyStage IV EGFR Lung Cancer: Marnie’s Patient Story
Marnie Clark first noticed that one leg felt unusual. The problem became impossible to dismiss when the leg became paralyzed. Early tests focused on the leg and found nothing, so Marnie and her husband paid for additional examinations rather than continue…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Valerie’s Patient Story
Valerie Brown had symptoms for several months before a CT scan found an abnormality in her lung. A needle biopsy confirmed lung cancer, and she underwent a lobectomy in March 2012. Recovery was painful, but she reached five years with no evidence of disease…
Read this storyEGFR Non-Small Cell Lung Cancer: Donna’s Patient Story
Donna Thompson was 45 when an emergency-room visit for high blood sugar unexpectedly revealed a lung mass. She had no smoking history, so lung cancer seemed unlikely to everyone around her, but scans and biopsy confirmed Stage II non-small cell lung cancer…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Lexi’s Patient Story
Lexi was 39 when she introduced herself as a wife, mother, sister, daughter, friend, and someone living with Stage IV non-small cell lung cancer. Her symptoms had started about 2 years earlier with left shoulder pain, weight loss, and then severe pain in her…
Read this storyStage III EGFR Non-Small Cell Lung Cancer: Lauren’s Survivor Story
Lauren was 38 and celebrating her first year as a mother when she began training for a half marathon and noticed what felt like a pulled muscle in her neck. An initial X-ray was explained as a possible old injury, but Lauren did not feel that answer fit, so…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Bill’s Patient Story
Bill was an active Park City skier, runner, and mountain biker when back pain after shoveling snow turned out to be much more than a pulled muscle. The pain lasted for months, and physical therapy did not help. Before a scheduled MRI, he became unable to walk…
Read this storyEGFR Non-Small Cell Lung Cancer: Joanne’s Patient Story
Joanne’s lung cancer was found by chance in February 2021. She had gone to the emergency room because of what seemed like an abdominal hernia or aneurysm, and an angio CT scan instead showed a mass in the upper lobe of her right lung. She had not had classic…
Read this storyStage I EGFR Lung Adenocarcinoma: Julie’s Patient Story
Julie was 42 when a routine mammogram indirectly led to a lung cancer diagnosis. The mammogram showed a calcified blood vessel, so her doctor ordered a calcium score CT scan. That scan found a 3 cm mass in her left lung. A chest CT confirmed it was still…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Gerri’s Patient Story
Gerri first noticed a slight cough that would not go away and a drop in stamina on the StairMaster. Before a planned hiking trip to Patagonia, she saw her doctor to check whether she was well enough for travel vaccinations. Her lungs sounded clear, but the…
Read this storyEGFR Lung Cancer: Ivy’s Patient Story
Ivy Elkins was remembered by the lung cancer community as an influential patient advocate whose work reached far beyond her own diagnosis. She became a major voice for people affected by EGFR-mutated lung cancer and helped co-found EGFR Resisters, a patient…
Read this storyStage IV EGFR Lung Cancer: Dann’s Patient Story
Dann Wonser was 49 in 2006 when an X-ray for possible broken ribs unexpectedly revealed Stage IV lung cancer. Biomarker testing showed EGFR and T790M mutations. He lived with lung cancer for 18 years before passing away on June 30, 2024. Across those years…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Rhonda’s Patient Story
Rhonda Martin was diagnosed in March 2018 with Stage IV non-small cell adenocarcinoma lung cancer. At diagnosis, the cancer had already spread to her brain, spine, hip bone, and lymph nodes. Her first treatment was whole brain radiation. While biopsy results…
Read this storyStage IV EGFR Lung Cancer: Anne’s Patient Story
Anne spent 35 years as a nurse and had already cared for her father through advanced lung cancer when she began having back pain in 2019. She initially blamed the pain on triathlon training and adjusted her exercise, but it kept worsening. Over the next 8…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Rosee’s Patient Story
Rosee’s symptoms began in September 2022 with severe dizziness, loss of balance, and a spinning sensation. Over the next 2 years, she developed hearing loss, persistent vertigo, migraines, and numbness in one hand. The symptoms were attributed to Ménière’s…
Read this storyStage IV EGFR Lung Cancer: Shannon’s Survivor Story
Shannon was 35 when a cough lingered for about 1.5 months, followed by severe neck pain that did not respond to repeated muscle relaxers. The pain reached 7 or 8 out of 10, limited her ability to turn her head or pick up her children, and continued through…
Read this storyStage IV EGFR Lung Cancer: Kelsey’s Patient Story
Kelsey was 36, a mother of 4, and working as a SoulCycle manager when severe back pain began changing her life. At first, she blamed work, commuting, aging, or a pulled muscle. Then she collapsed while coaching baseball and later had to crawl to the bathroom…
Read this storyStage II EGFR Non-Small Cell Lung Cancer: Daniel’s Patient Story
Daniel West had no symptoms before a routine heart scan in October 2022 showed 2 nodules in his right lung. A bronchoscopy biopsy confirmed early-stage non-small cell lung cancer. Daniel, who had quit smoking in 2006, sought a second opinion at UT MD Anderson…
Read this storyStage III EGFR Lung Cancer: Roxanne’s Patient Story
Roxanne was 43, a single mother, and a special needs teacher when lung cancer was found almost by accident. She had gone to her gynecologist for abdominal pain that felt like an ovarian cyst. A CT scan did show a cyst, but it also caught part of her right…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Maggie’s Patient Story
Maggie was 60 in 2021 and expected the year to be one of the best of her life. Instead, unusual symptoms led to a Stage IV lung cancer diagnosis. She first had an ocular migraine, then leg pain that turned out to be a partial blood clot. A CT scan showed…
Read this storyStage I EGFR Lung Cancer: Shira’s Survivor Story
Shira felt completely healthy. She was a lifelong runner, had no lung symptoms, and almost skipped the full-body MRI her husband kept encouraging her to do. The scan found a lung mass but described it as a minor finding if she had no symptoms. Her father, a…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Jennifer’s Patient Story
Jennifer’s Stage IV lung cancer was found almost by accident. She had been in a car accident that revealed a lung spot, but she did not learn about it until 10 months later. When she later saw her primary care doctor for what she thought was a sinus…
Read this storyStage IV EGFR Lung Cancer Patient Story
This unnamed woman’s lung cancer journey began with leg swelling. She first received water-reducing medication, but the swelling continued and eventually involved more of her body. Doctors became concerned about her heart, found fluid around the heart area…
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