EGFR Mutation: 55 Real Stories
55 stories match EGFR mutation. 46 of them mention targeted therapy.
EGFR Non-Small Cell Lung Cancer: Michelle’s Patient Story
Michelle Vacca’s lung cancer was found by accident in March 2017, when she went to the emergency room for an unrelated problem and chest scans showed a spot on her lung. She had never smoked and had no symptoms. Because the non-small cell lung cancer was…
Read this storyStage IV EGFR Lung Cancer: Emily’s Patient Story
Emily was active and healthy when a cough that began in fall 2023 kept lingering. By August 31, 2024, shortness of breath on a familiar hike and a changing voice made her seek care. A chest X-ray showed nodules, and a CT scan led to the call no one wants: the…
Read this storyStage II EGFR Lung Cancer: Samantha’s Patient Story
Samantha Vaughn first noticed breathlessness and hoarseness after having COVID in 2022. For about 6 months, the symptoms were treated as long COVID, sinus problems, or infection, with inhalers, steroids, and antibiotics that did not help. In May 2023, she…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Jenny’s Patient Story
Jenny Apple was a healthy nonsmoker, wife, and mother whose first major symptom was persistent pain on the left side of her ribs. During the COVID period, getting care was difficult, and the pain was initially dismissed as strain from lifting her young child…
Read this storyStage IV EGFR Lung Cancer: Natasha’s Patient Story
Natasha, a primary school teacher from Yorkshire, England, was diagnosed with EGFR-positive lung cancer in January 2023 after months of cough, hoarse voice, and squeaky breathing. She was active and had never expected lung cancer, especially as a nonsmoker…
Read this storyStage IV EGFR Lung Cancer: Leah’s Patient Story
Leah Phillips, co-founder of the Young Lung Cancer Initiative, was diagnosed in December 2019 with Stage IV lung cancer carrying an EGFR exon 19 deletion. At diagnosis, her primary tumor was in the right middle lobe of the lung, and she had 13 bone metastases…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Jeff’s Patient Story
Jeff had already survived an unusual cancer experience before his lung cancer diagnosis. In 2017, a painful cervical spine mass was first treated as a likely non-cancerous schwannoma, but surgery showed cancer and could not remove everything safely because of…
Read this storyStage IV EGFR Lung Cancer: Leah’s Patient Story
Leah Phillips never smoked, so a Stage IV lung cancer diagnosis in December 2019 felt impossible. She was 43, with children ages 14, 13, and 9, and had been dealing with a persistent cough, unintentional weight loss, chest heaviness, and coughing up blood…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Filipe’s Patient Story
Filipe was 36 when a headache and blurred vision led to a Stage IV lung cancer diagnosis. A brain MRI showed 7 brain metastases, including a 4 cm lesion at the back of his head. CT imaging and biopsy confirmed lung cancer as the primary. Liver lesions were…
Read this storyEGFR Lung Cancer: Jill’s Survivor Story
Jill Feldman was diagnosed with lung cancer in 2009 at age 39 after years of watching the disease affect her family. She lost 2 grandparents to lung cancer within weeks of each other, then her father died 3 months after his diagnosis at age 41. In her 20s…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Leah’s Patient Story
Leah Phillips was diagnosed with Stage IV non-small cell lung cancer at age 43 in December 2019. Her first symptoms were a persistent dry cough, chest heaviness, shortness of breath, fatigue, weight loss, and later coughing up blood. Several visits were…
Read this storyStage II EGFR Non-Small Cell Lung Cancer: Daniel’s Survivor Story
Daniel West’s lung nodules were found unexpectedly in 2022 when he used a workplace opportunity to have cardiac testing after his father’s death from a heart attack. CT and PET imaging showed a concerning nodule in the middle lobe of his right lung, and…
Read this storyStage I EGFR Lung Adenocarcinoma: Phuong’s Survivor Story
In 2019, Dr. Phuong Ho developed a mild cough and chest tightness that did not improve with inhalers. Chest X-rays and lung function tests were normal, but her symptoms continued. A pulmonologist later ordered a CT scan, which found an almost 2-centimeter…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Jeff’s Patient Story
Jeff had previously undergone extensive surgery and radiosurgery for a rare cancer involving his cervical spine in 2017. During follow-up in March 2021, a slight cough prompted a chest X-ray that showed a large mass in the lower right lung. Further testing…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Anne’s Patient Story
Anne Laporte, a nurse for about 35 years and an endurance athlete, had a lung nodule followed years earlier and then dismissed because she was a lifelong nonsmoker. Years later, progressive back pain was treated as a sports injury through multiple doctor and…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Ashley’s Patient Story
Ashley had no symptoms when lung cancer was found by chance. She went to the hospital for a gynecologic issue, and CT imaging showed lung nodules. Pathology was sent to Mayo Clinic, and about 1 week later she learned it was non-small cell lung cancer. Both…
Read this storyStage IV EGFR Lung Cancer: Ivy’s Survivor Story
Ivy E. was 47 when neck pain and trouble straightening her elbow led to an unexpected Stage IV lung cancer diagnosis. Doctors first thought the symptoms might be an overuse injury. Imaging of the elbow showed a mass involving the joint and bone. After…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Tiffany’s Patient Story
Tiffany was a labor and delivery nurse, Pilates instructor, wife, and mother of twins when shortness of breath and right-sided pain led to a long diagnostic workup during the pandemic. A bronchoscopy was followed by a collapsed lung and hospital stay. Imaging…
Read this storyStage IV EGFR Lung Adenocarcinoma: Emily’s Patient Story
Emily Bannister was 46, a physician, and a mother of 3 when breathing symptoms led to a Stage IV lung cancer diagnosis. She first noticed wheezing while lying down, shortness of breath, and a fast heart rate with stairs. An urgent-care X-ray looked like…
Read this storyEGFR Non-Small Cell Lung Cancer: Karen’s Patient Story
Karen Knetter learned she had non-small cell lung adenocarcinoma with an EGFR mutation during the COVID-19 lockdown period. While she was in the hospital, her oncologist’s encouragement helped her feel that she had a full team behind her. Karen described that…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Ashley’s Patient Story
Ashley’s later lung cancer segment focuses on living with an incurable but treatable disease. By this point, she had already gone through genomic testing and had chosen care at a larger cancer center about 90 miles away. Her cancer was EGFR-positive non-small…
Read this storyStage IV EGFR Lung Cancer: Ashley’s Patient Story
Ashley’s lung cancer treatment changed because genomic testing found an EGFR-positive cancer with the T790M marker. This part of her story focuses on how she was able to start osimertinib, also called Tagrisso, soon after it became FDA-approved for her cancer…
Read this storyStage IV EGFR Non-Small Cell Lung Cancer: Ashley’s Patient Story
Ashley was 36 when an unrelated gynecologic infection led to the discovery of lung cancer. She was admitted for a Bartholin gland infection, and an abdominal CT scan incidentally captured the lower part of her lungs. Small lung nodules were seen. At first…
Read this storyStage I EGFR Lung Adenocarcinoma: Ashley’s Patient Story
Ashley Stringer was 34 when shortness of breath on the treadmill led to a lung cancer diagnosis. An X-ray showed a suspicious spot on her left lung, and biopsy confirmed Stage IA adenocarcinoma. Tumor testing showed the cancer was EGFR-positive. Because only…
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