Stage III Invasive Lobular Carcinoma: Kerri's Survivor Story

Patient Info: Kerri, Female, 40s | Stage III

After lumpectomy and double mastectomy for Stage III invasive lobular carcinoma, Kerri used her experience to advocate for better ILC awareness, imaging education, and support for newly diagnosed patients.

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Stage I Invasive Lobular Carcinoma: Chickie's Patient Story

Patient Info: Chickie, Female, 70+ | Stage I

Biomarkers: Oncotype DX scores 16 and 17

Chickie had bilateral Stage I ILC treated with bilateral lumpectomy, clear margins, negative lymph nodes, low Oncotype DX scores that avoided chemotherapy, and photon radiation.

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Stage III Invasive Lobular Carcinoma: Lucy's Survivor Story

Patient Info: Lucy, Female, 40s | Stage III

Lucy was treated for Stage III invasive lobular carcinoma with double mastectomy, aggressive chemotherapy, and radiation, and later celebrated 20 years with no evidence of disease.

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Stage II Invasive Lobular Carcinoma: Alma's Patient Story

Patient Info: Alma, Female | Stage II

Alma had Stage II invasive lobular carcinoma treated with lumpectomy, chemotherapy, radiation, and planned 10 years of tamoxifen, then found a local recurrence 4.5 years after diagnosis.

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Stage II HR-Positive Invasive Lobular Carcinoma: Tanya's Patient Story

Patient Info: Tanya, Female, 40s | Stage II

Biomarkers: Genetic testing negative; Oncotype DX score 27; MammaPrint low risk; ER-positive

Tanya had Stage II ER-positive breast cancer with a large lobular tumor found on MRI, underwent bilateral mastectomy with immediate reconstruction, completed 4 rounds of chemotherapy, and started tamoxifen.

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Stage IV HR-Positive Invasive Lobular Carcinoma: Nikoo's Patient Story

Patient Info: Nikoo, Female | Stage IV

Biomarkers: ER-positive; PR-positive; HER2-negative

Metastatic Site: Peritoneum | Ascites | Possible bone

Nikoo’s early lobular breast cancer treated in 2003 with lumpectomy, radiation, and 5 years of tamoxifen recurred 19 years later as ER-positive, PR-positive, HER2-negative metastatic lobular breast cancer involving the peritoneum, ascites, and possible bone.

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Stage III Colorectal Cancer: Rebecca's Survivor Story

Patient Info: Rebecca Barber, Female, Under 40 | Stage III

Completed treatment for Stage IIIB colorectal cancer, including chemotherapy, surgery with ileostomy/reversal, and radiation; ongoing issues include pain, LARS, neuropathy, anxiety, and survivorship support needs, with no explicit NED status stated.

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Stage III EGFR Non-Small Cell Lung Cancer: Lauren's Survivor Story

Patient Info: Lauren, Female, Under 40 | Stage III

Biomarkers: EGFR mutation

No evidence of cancer on 1-year scan after fertility preservation, chemotherapy, radiation, and removal of half the left lung for Stage III EGFR-mutated lung cancer.

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Stage IV Colorectal Cancer: Gwen's Survivor Story

Patient Info: Gwen Powell, Female | Stage IV

Biomarkers: Biomarker testing performed; results not reported

Metastatic Site: Ovary; liver

Stage IV colon cancer with ovarian mass and liver metastasis treated with chemotherapy and surgeries including colostomy/reversal; she reported being almost 2 years NED while living with neuropathy and surveillance anxiety.

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Stage IV EGFR Non-Small Cell Lung Cancer: Bill's Patient Story

Patient Info: Bill, Male | Stage IV

Biomarkers: EGFR exon 21 mutation

Metastatic Site: Spine; brain; hips/bone

Stage IV EGFR exon 21 lung cancer improved in brain and spine on osimertinib, but later lung-mass growth led to clinical-trial treatment; Bill remained active in advocacy and felt positive about progress.

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Stage II Colorectal Adenocarcinoma: Robert's Survivor Story

Patient Info: Robert, Male | Stage II

High-risk Stage II colon adenocarcinoma treated with surgery removing the ascending colon and 10 cm of distal small bowel; latest source text supports survivorship after relatively early detection but does not explicitly state NED or no recurrence.

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EGFR Non-Small Cell Lung Cancer: Joanne's Patient Story

Patient Info: Joanne, Female, 60s

Biomarkers: EGFR exon deletion 19 mutation

Ongoing care after right upper-lobe resection, 4 rounds of chemotherapy, and daily Tagrisso for EGFR exon 19 deletion lung adenocarcinoma; formal stage is not stated in the story.

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Stage III Colorectal Cancer: Stéphanie's Patient Story

Patient Info: Stéphanie Lévesque | Stage III

Biomarkers: Biomarker testing performed; results not reported

Stage III colorectal cancer with chemotherapy, radiation, surgery, ileostomy, and serious treatment complications; care was still ongoing almost 1 year after diagnosis.

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EGFR Lung Cancer: Caroline's Patient Story

Patient Info: Caroline, Female

Biomarkers: Germline EGFR T790M mutation

Ongoing surveillance for germline EGFR T790M-associated lung nodules / lung cancer risk after October 2022 surgery and complications; the story does not support Stage IV disease for Caroline.

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Stage III Colorectal Cancer: Jameelah's Survivor Story

Patient Info: Jameelah Mahmoud, Female, Under 40 | Stage III

No evidence of disease after laparoscopic colon surgery and 8 rounds of chemotherapy for Stage III colorectal cancer; remains in surveillance while processing visible and invisible survivorship scars.

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Stage IV Lung Cancer: Xavier's Patient Story

Patient Info: Xavier Sanders, Male | Stage IV

Metastatic Site: Liver; brain; lymph nodes

Living with Stage IV lung cancer involving lymph nodes, liver, and 20 to 30 brain tumors while advocating for service members and caregiver support; exact treatment regimen is not reported.

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Stage IV Colorectal Cancer: Amber's Survivor Story

Patient Info: Amber Madden, Female, 40s | Stage IV

Biomarkers: Comprehensive hereditary cancer genetic testing negative; tumor biomarkers not reported

Metastatic Site: Liver

Stage III colon cancer upstaged to Stage IV after liver metastasis was found; after colectomy, chemotherapy, liver surgery, and more chemotherapy, CT scans in May, August, and November 2025 showed no evidence of active cancer.

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Stage I EGFR Lung Adenocarcinoma: Julie's Patient Story

Patient Info: Julie, Female, 40s | Stage I

Biomarkers: EGFR exon 19 deletion

Ongoing care after Stage IB EGFR exon 19 lung adenocarcinoma treated with lower left lobectomy and Tagrisso/osimertinib, with CT and MRI surveillance; no recurrence/NED statement is explicitly provided.

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Colorectal Cancer: Kaitlin's Patient Story

Patient Info: Kaitlin Van Saders, Female, Under 40

Rectal cancer story with lower anterior resection and emergency diverting ileostomy in August 2024; formal stage and latest disease status are not reported.

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Stage III ROS1 Non-Small Cell Lung Cancer: Wendy's Survivor Story

Patient Info: Wendy, Female | Stage III

Biomarkers: ROS1-positive / ROS1-rearranged

Completed chemoradiation, surgery, and post-surgery radiation for Stage III ROS1-positive NSCLC by January 2017 and later shared a long-term survivor/advocacy story; no explicit NED statement is given.

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Stage III Colorectal Cancer: Pete's Survivor Story

Patient Info: Pete Di Stefano, 40s | Stage III

Completed surgery and 3 months of FOLFOX chemotherapy for Stage IIIB transverse colon cancer; latest NED status is not reported, so this is best classified as survivorship / surveillance.

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Stage IV EGFR Non-Small Cell Lung Cancer: Gerri's Patient Story

Patient Info: Gerri, Female | Stage IV

Biomarkers: EGFR-positive / EGFR-mutated

Metastatic Site: Not reported

Living actively with Stage IV EGFR-positive NSCLC after wedge resection and unnamed EGFR-directed targeted therapy, with major hiking and travel goals continuing after diagnosis.

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Jessica Engle: lymph-node-involved colorectal cancer with colostomy reversal and maintenance chemotherapy

Patient Info: Jessica Engle

Living with colorectal cancer that had spread to abdominal lymph nodes; after surgery, colostomy/reversal, and treatment starting January 2023, disease was stable in 2026 with no further spread while she continued maintenance chemotherapy every 2 weeks.

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Stage IV KRAS Non-Small Cell Lung Cancer: Maureen's Patient Story

Patient Info: Maureen, Female | Stage IV

Biomarkers: KRAS mutation

Metastatic Site: Not reported

Living with KRAS-mutated Stage IV lung cancer after initial Stage I diagnosis, later surgery, and radiation, while remaining active in KRAS and lung cancer advocacy.

Lung Cancer Research FoundationRead more →