Colorectal Cancer: Nadia's Survivor Story

What happened, in summary

Nadia lived with ulcerative colitis, a form of inflammatory bowel disease, from age 15. For about 25 years, she managed flares, frequent bathroom urgency, colonoscopy surveillance, and close follow-up with her gastroenterologist. She was also in a clinical trial, which meant she was monitored closely and had a strong relationship with her doctor. Before a routine colonoscopy, Nadia developed new symptoms: more trips to the bathroom, abdominal pain and cramping, blood in her stool, fatigue, body aches, and a sense that something was different. After the colonoscopy, she waited weeks for results. When she finally met with her doctor, she learned she had colorectal cancer. The tumor was low in the rectum, which meant she was not a candidate for reversal. Her treatment was a total proctocolectomy, removing the colon and rectum, with creation of a permanent ileostomy and what she called Barbie butt surgery. At first, Nadia feared the ostomy more than the cancer. She struggled with body image, clothing choices, and the unknowns of living with a pouch. Over time, the ileostomy gave her freedom from the constant symptoms of ulcerative colitis. As of December 2025, Nadia was living actively with her ostomy, sharing practical advice about appliance fit, leaks, swimming, travel, exercise, and confidence.