BRCA2 Breast Cancer: Heiner's Survivor Story

What happened, in summary

Heiner Töpfer was 66 at the time of his interview. In 2011, he accidentally felt a lump in his breast and went to the gynecologist of his then partner. Ultrasound and biopsy showed a malignant tumor. A CT scan found that the tumor was locally limited, which helped him see the diagnosis as treatable rather than hopeless. He went through breast surgery, chemotherapy, and radiation therapy without major immediate problems. Afterward, he took anti-estrogen therapy for more than 5 years. The treatment brought hot flashes and erectile dysfunction, affecting intimacy and his relationship at the time. Genetic testing showed a BRCA2 mutation, so Heiner stayed closely connected to prevention and follow-up care. Four years after the first breast operation, he also chose removal of the other breast for safety. In 2019, he was diagnosed with prostate cancer and had a prostatectomy. After the prostate operation, he permanently lost erectile function and later explored new ways of experiencing sexuality through tantric seminars. He became a more independent and informed patient through these illnesses. He also found satisfaction in volunteering, including support for refugees, socially disadvantaged people, and advocacy through the German network for men with breast cancer.