Stage IV Breast Cancer: Lourdes's Patient Story

What happened, in summary

Lourdes Monje was 25 when they noticed a new mass in their chest in October 2020. After an ultrasound, biopsy, and several scans, they were diagnosed with Stage IV breast cancer in January 2021. The diagnosis disrupted plans for a new career and brought difficult questions about the future.

Lourdes started hormone suppression with ribociclib. After 6 months, treatment changed to palbociclib, which they took for more than 2 years. During this period, they also had a mastectomy and radiation. A later scan showed nodules in a lung, leading their doctor to recommend a clinical trial. Lourdes qualified and began an investigational treatment. The trial brought side effects and some uncertainty, but the problems became manageable.

Their cancer experience has also intersected with being nonbinary. Lourdes appreciated having a supportive surgeon and respectful conversations about reconstruction and gender expression. They have also faced concerns common to young adults with metastatic cancer, including career plans and the possibility of having children. While treatment continues, Lourdes is working, spending time with family and friends, and focusing on creating meaningful memories.