Stage IV HER2-Positive Breast Cancer: Leftfootforward's Survivor Story

This breast cancer diagnosis at a glance

Stage at diagnosis
Stage IV
Biomarkers
HER2-positive
Sex
Female
Spread to
Brain | Liver
Treatment
chemotherapy, surgery, radiation, targeted therapy and antibody therapy
Outcome
Cancer-Free / NED

Treatment course, step by step

  1. December 2010 Stage IIB breast cancer at age 37
  2. A/C chemotherapy
  3. Herceptin
  4. bilateral mastectomy
  5. 36 rounds of radiation
  6. Herceptin for about 8 months, stopped when ejection fraction decreased
  7. December 2012 metastatic breast cancer to brain and liver
  8. Gamma Knife radiation for brain metastasis
  9. Xeloda plus Tykerb
  10. February 2015 craniotomy removed tissue that proved to be necrosis from prior Gamma Knife treatment
  11. July partial left hepatic lobectomy removed solitary liver tumor
  12. Tykerb stopped and Herceptin resumed
  13. latest scans showed no evidence of disease.

What happened, in summary

Leftfootforward was 37 when she was diagnosed with Stage IIB breast cancer in December 2010. Her treatment began with A/C chemotherapy and then Herceptin. She had a bilateral mastectomy, followed by 36 rounds of radiation. Herceptin continued for about 8 months, but it had to be stopped when her ejection fraction decreased. In December 2012, she learned that the breast cancer had become metastatic, with spread to the brain and liver. The liver was so involved that chemotherapy was the only realistic option at that point. The brain metastasis was treated with Gamma Knife radiation. She then took Xeloda and Tykerb. In February 2015, she had a craniotomy to remove tissue that turned out to be necrosis from the earlier Gamma Knife treatment, not active tumor. In July, she had a partial left hepatic lobectomy to remove a solitary liver tumor. After that, Tykerb was stopped and Herceptin was restarted. Her latest scans showed no evidence of disease. She continued to describe herself as living with Stage IV disease, even while NED, and encouraged others with metastatic breast cancer to ask questions, seek help, and speak up about side effects.

Where this story comes from

This is a lay summary of an account first published by BreastCancer.org (ES). Read the original in full

How we source and attribute stories Accuracy and limitations

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