Stage III Invasive Lobular Carcinoma: Stacy's Survivor Story

What happened, in summary

Stacy had received regular mammograms since age 40 and was repeatedly told the results were clear. Dense breast tissue was noted, and automated whole-breast ultrasound was recommended only once. During a 2023 examination, her gynecologist felt that one breast was firmer than the other. Both a diagnostic mammogram and ultrasound were read as clear, but the gynecologist continued the referral process.

By the time Stacy reached a breast surgeon’s office, her nipple had started to invert. An MRI finally showed a large tumor in the left breast. Biopsy confirmed stage 3 invasive lobular carcinoma that was hormone receptor-positive and HER2-negative. One lymph node was involved. Her care team believed the cancer had been growing slowly for several years without forming a distinct lump.

Stacy received chemotherapy, followed by a mastectomy, radiation and breast reconstruction. After active treatment, she began Letrozole, planned for 10 years, and continued regular monitoring.

Her experience changed how she viewed clear screening results. Stacy now emphasizes that lobular breast cancer may not produce a lump and can remain hidden on mammography and ultrasound, particularly in dense breasts. She shares information to help others recognize persistent changes and ask whether additional imaging is needed.