Stage I Invasive Lobular Carcinoma: Carol's Survivor Story

What happened, in summary

Carol was 70 when she was diagnosed with invasive lobular breast cancer in July 2022. The cancer was stage 1A and was found early, but the tumor itself could not be felt and was not visible on the mammogram. Calcifications in the same area helped draw attention to the abnormality.

Carol had a lumpectomy in August. The surgical margins were clear, and her lymph nodes did not contain cancer. Because no one in her family had experienced breast cancer, the diagnosis and the unfamiliar lobular subtype prompted her to search for more information.

Her surgeon referred her to local medical and radiation oncologists. A physician friend encouraged her to obtain second opinions because treatment recommendations could differ. While considering her options, Carol found a detailed scientific review through the Lobular Breast Cancer Alliance. With her background as a chemical engineer, she was comfortable reading the research and used it to prepare questions for her care team.

Carol began an aromatase inhibitor and said she was doing well, apart from an occasional hot flash. Her experience made her aware that lobular cancer can spread and appear differently from ductal breast cancer. She wanted other patients to receive clear subtype-specific information and supported more research focused on lobular disease.