Journey of Resilience
Defying the Odds: Craig’s Journey With Colorectal Cancer and Lynch Syndrome
How a Young Patient Overcame Multiple Surgeries, Chemotherapy, and Immunotherapy to Find Hope
Craig W. was just 34 years old when he first noticed a recurring pain in his abdomen in December 2015. Initially attributed to diet-related issues, the pain returned in February 2016, accompanied by severe fatigue. Concerned, his GP ordered a blood test that revealed low iron levels and prompted an immediate referral for a colonoscopy. During the procedure, the radiologist described a “potentially sinister” finding, and for the first time, Craig heard the word “cancer.”
A series of CT and PET scans confirmed that Craig had colorectal cancer. He met with his surgeon shortly afterward, supported by his “legendary” nurse, Joyce Livingston. Surgery to remove part of his colon was followed by chemotherapy, but by December 2016, the cancer had spread to his liver, left kidney, left ureter, rectum, and surrounding tissue. In February 2017, a more extensive bowel resection led to a permanent stoma, combined with another round of chemotherapy.
Despite side effects like tingling in his fingers and toes, Craig persisted. Later that year, surgeons removed about 40% of his liver, and soon after, scans detected new growths in his lungs. He then began a groundbreaking immunotherapy trial, combined with a targeted drug, which has since led to reductions or stability in his tumors. Further genetic testing revealed Craig has Lynch syndrome, a hereditary condition that significantly raises the risk of bowel cancer.
Over time, Craig has learned to adapt—physically, emotionally, and even professionally. He gradually became more comfortable with his stoma and embraced a positive, “blunt” perspective on living with a serious cancer diagnosis. Refusing to let cancer stall his life plans, Craig recently married his longtime partner, proving that even amid uncertainty, celebration and growth remain possible.
Diagnosis
Stage IV bowel cancer at age 34, later confirmed to be associated with Lynch syndrome
Biomarker profile: Not report
Treatment
Multiple surgeries (colon resections, partial liver resection, kidney resection), chemotherapy, and an immunotherapy trial
Outcome
Ongoing stability or reductions in tumor growth, leading to a stronger outlook on life and recent marriage
Source: Bowel Cancer UK