How One Patient’s Online Advocacy and Determination Transformed a Grim Diagnosis

Michael’s unexpected cancer journey began with a routine CT scan of his arthritic neck, which revealed a significant mass—despite him experiencing no related symptoms. An in-depth evaluation confirmed advanced head and neck cancer. Initially reluctant to share the severity of his condition with his wife, who was already facing health challenges, he ultimately confided in her and her sister, forming a vital support system.

The prescribed treatment plan was rigorous. Surgeons performed a neck dissection to remove the primary tumor, several lymph nodes, and affected salivary glands. Next came 13 chemotherapy sessions with cisplatin and 35 rounds of radiation. Concern arose early on about potential complications, including feeding tubes and dental issues, yet Michael—often called “Mr. Sunshine”—continued working whenever feasible, choosing to maintain a semblance of normal life.

Through his active presence on Twitter, Michael documented the entire 18-month ordeal. There, he connected with a supportive online community eager to follow his progress. He eventually received encouraging news during his first post-treatment PET scan: no evidence of disease. Defying initial grim prognoses, he continues to monitor his health closely, believing in the power of a proactive stance and unwavering medical guidance.

During chemotherapy, he found camaraderie among other patients—especially men, as head and neck cancer has higher prevalence in that demographic. Yet Michael’s challenges extended beyond cancer. He also managed bipolar disorder and severe anxiety, underscoring the importance of not battling illness alone. The financial burdens added to the stress, inspiring him to advocate for organizations that lessen the economic strains of cancer.

Today, Michael attributes his survival and newfound empathy to the difficulties he faced. The side effects—such as nerve damage, depression, and financial strain—are what he calls the “collateral damage” of cancer. Still, this journey sharpened his drive to help others in similar positions, offering hope, connection, and a reminder that a devastating diagnosis can ultimately lead to growth and purpose.